Below you’ll find useful links related to the research and clinical implementation of Patient Reported Outcomes. Please contact us if you think additional links should be considered.


Cancer Care Ontario

COMET Initiative

Patient Reported Outcomes Measurement Information System (PROMIS)- National Institutes of Health

Core Outcome Groups

MAPI Research Trust

European Organisation for Research and Treatment of Cancer (EORTC)

International Society for Pharmacoeconomics and Outcomes Research (ISPOR)

International Society for Quality of Life Research (ISOQOL)

Patient Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)

University of Oxford Patient Reported Outcomes Group

Measurement Guidelines

Consensus-Based Standards for the Selection of Health Measurement Instruments

User’s Guide to Implementing Patient Reported Outcomes Assessment in Clinical Practice (ISOQOL)